We are running out of IV sites for Corban. He will probably end up needing the broviac central IV line put back in, which does not make me happy. They are also talking about trying to surgically fix the chylothorax at the same time (what might be causing the fluid on his lungs).
Pray his IV site holds long enough so they don't have to do an emergency broviac line today. That would not be pretty.
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
Blog Archive
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2011
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September
(23)
- In My Dreams
- Another Day of Battle
- Surgery Scheduled
- The "You Can'ts"
- The Warfare is Long
- Out of IV Sites
- Ups and Downs
- MRI Results
- Philadelphia?
- Catching up on His ZzZzs
- Isolation Room
- God Was Good. God Is Good.
- Chest Tube Is Out!
- Oh, to Hear Him Cry!
- Back to the Drawing Board
- God Speaking to Me
- Broviac is Out
- Game Plan
- A New Medicine
- Juggling Everything with the Kids
- Medical Interventions
- A Collapsed Lung
- Oh Happy Day!
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September
(23)
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