Is everybody still praying for Corban? He had a rough couple days and the doctor had to put a chest tube in today. Definitely feeling like it's another set back.
His head is starting to swell again AND he had to have a blood transfusion last night. I thought we were on the up and up! I don't know if I can take much more of this up and down. He's almost 2 months old. :(
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
Blog Archive
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2011
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September
(23)
- In My Dreams
- Another Day of Battle
- Surgery Scheduled
- The "You Can'ts"
- The Warfare is Long
- Out of IV Sites
- Ups and Downs
- MRI Results
- Philadelphia?
- Catching up on His ZzZzs
- Isolation Room
- God Was Good. God Is Good.
- Chest Tube Is Out!
- Oh, to Hear Him Cry!
- Back to the Drawing Board
- God Speaking to Me
- Broviac is Out
- Game Plan
- A New Medicine
- Juggling Everything with the Kids
- Medical Interventions
- A Collapsed Lung
- Oh Happy Day!
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September
(23)
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