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Corban had his swallow study today. It was much like the day we went in for our ultrasound - starting out with nervous hope (that the test would show everything was fine) then ending with all hopes being dashed upon the rocks of reality.
Everything is not fine. He failed the study in more ways than one. He has so many different things to work on that it's hard to know where to start.
He aspirated rather quickly, which is not a good sign, especially given his age. It means this problem will not be going away anytime soon. And it means he's probably been aspirating all these months of feeding him. He just does it silently (without coughing).
The lady who conducted the test was amazed that he hasn't gotten pneumonia or any other respiratory infections yet, but said this was probably due to the fact that he's been on breastmilk (win!). The enzymes in the milk work at fighting bacteria, so if it hadn't been for this, he probably would have had multiple infections by now and would have been in for the test a lot sooner.
So, what does this mean? I don't really know.
I know it means we have another gigantic mountain to climb. It means we have another long road ahead of us; only this time it's not orthopedic. It means we have yet another complexity factor shoved into our already complex picture. And it means I might have a nervous breakdown. Or two. Or three.
Trying to remember Isaiah 40:30-31, "Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."
Not feeling it. But praying for it.
Swallow Study Woes
Corban had his swallow study today. It was much like the day we went in for our ultrasound - starting out with nervous hope (that the test would show everything was fine) then ending with all hopes being dashed upon the rocks of reality.
Everything is not fine. He failed the study in more ways than one. He has so many different things to work on that it's hard to know where to start.
He aspirated rather quickly, which is not a good sign, especially given his age. It means this problem will not be going away anytime soon. And it means he's probably been aspirating all these months of feeding him. He just does it silently (without coughing).
The lady who conducted the test was amazed that he hasn't gotten pneumonia or any other respiratory infections yet, but said this was probably due to the fact that he's been on breastmilk (win!). The enzymes in the milk work at fighting bacteria, so if it hadn't been for this, he probably would have had multiple infections by now and would have been in for the test a lot sooner.
So, what does this mean? I don't really know.
I know it means we have another gigantic mountain to climb. It means we have another long road ahead of us; only this time it's not orthopedic. It means we have yet another complexity factor shoved into our already complex picture. And it means I might have a nervous breakdown. Or two. Or three.
Trying to remember Isaiah 40:30-31, "Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."
Not feeling it. But praying for it.
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