In My Dreams

I woke up this morning dreaming about Corban. I dreamed that I finally got him home, was holding him, and getting ready to feed him. Then a nurse came up and said, "no, actually, I was getting ready to feed him." I argued with her and said that he was my baby and "no, she couldn't have him." So, she started to angrily yank him out of my arms. I pulled him back. The dream ended with us both pulling on Corban, neither of us winning.

I have issues.

Another Day of Battle

Another day of battle. Not people, but medical terminology, risks, benefits, decisions. Things that are beyond us, and even beyond the doctors. Praying that we made the right choice. We really did feel that the Lord was with us though, guiding us. So, we ended up opting out of the procedure to try to repair Corban's lymph duct, and will wait another week or so to see if he improves on his own.

PLEASE everyone pray for a miracle, and that he won't have to have this procedure done! It is not pretty. The surgery would entail going up from under his ribcage, compressing his lung, possibly injuring his lung, probably breaking his ribs, just to possibly fix the possible problem. If his fluid improves this week, then we won't have to consider this painful procedure.

Also, the broviac line went in well, with no complications to speak of. Now that he's out of IV sites, he really needed this central IV line to deliver his pain meds, antibiotics and nutritional supplements. His electrolytes are all messed up and it's a constant battle to keep his sodium, potassium and calcium levels at a safe level. Also, he is battling a bacterial infection, so he's on another round of antibiotics. He's got a lot going on in that little body of his. Pray to the Great Physician for our baby boy!

Surgery Scheduled

Corban is 2 months old today. It's been such a long 2 months. He has an IV site in his knee right now and we're praying that holds until tomorrow. They are completely out of options. Yesterday, the nurses had to stick him 14 times before they could get an IV site that worked!

So, surgery is scheduled for tomorrow at 1:30pm. The surgeon will put in another broviac central IV line and will also check to see if Corban's main lymph duct has been injured. If it is, he'll have to determine if it's fixable and possibly perform surgery on it tomorrow.

The "You Can'ts"

If all you hear all day is "you can't", you start to believe it. "You can't stand there, you can't park there, you can't touch that, you can't do that, you can't hold him, you can't touch him, you can't have him, you can't you can't you can't." So tired of the "you can'ts"!

The Warfare is Long

"And when the strife is fierce, the warfare long,
steals on the ear the distant triumph song,
and hearts are brave again, and arms are strong.
Alleluia, Alleluia!" (from the song, "For All the Saints")

The warfare is long right now. I need a brave heart and strong arms.

Out of IV Sites

We are running out of IV sites for Corban. He will probably end up needing the broviac central IV line put back in, which does not make me happy. They are also talking about trying to surgically fix the chylothorax at the same time (what might be causing the fluid on his lungs).

Pray his IV site holds long enough so they don't have to do an emergency broviac line today. That would not be pretty.

Ups and Downs

Is everybody still praying for Corban? He had a rough couple days and the doctor had to put a chest tube in today. Definitely feeling like it's another set back.

His head is starting to swell again AND he had to have a blood transfusion last night. I thought we were on the up and up! I don't know if I can take much more of this up and down. He's almost 2 months old. :(