Corban and I just returned last night from our 7th trip up to Philadelphia. We had a routine check-up, traveling was rather smooth, so overall it was a decent trip.
It was a sobering journey though, as I was reminded "this ain't over yet." Corban has come SO far over the past year, and I was busy reveling in his birthday and all the progress he's made, that I kind of forgot how far we still have to go.
While his feet are looking amazing, it doesn't mean they won't ever need further correction. There's a chance he might have to have pins put in his feet again, later on down the road.
His hips are a MESS. His hips are still dislocated and the ball joints are backwards (from when his femurs broke at birth. They healed in the opposite direction). His hips should be corrected within the next 6 months or so and his doctor informed me on Monday that he will need to cut and remove a section of Corban's femurs so he can fit the hips into socket. So, his femurs will always be short. :(
Corban also has a little bit of scoliosis in his upper spine. Not super serious now, but something we'll need to keep an eye on as he grows.
And his knees. Oh! His knees...
They are bothersome. His right knee is subluxed, so the bones don't line up like they should. His left knee is also subluxed, but with an additional rotational craziness going on. So, they are both a mess, and will need correcting down the road. Doctor says probably when he's around 4 years old, he will need external fixators. Which in my book, stinks!
Have you seen these things? Can you imagine having this done to your leg? Ugh! Not what I want to see for my baby! I hate it.
I was so ready to move on. To get his hips corrected and move on. But it doesn't look like this road is ending anytime soon. We are not in for months of surgeries, but years. Years and years. And years.
Sigh.
1 comments:
When I read this entry, I thought "Lord, how long?" Some of the most fervent prayers are a single sentence.My you feel Jesus near you as you go about your routine. Medical appointments can be mundane and difficult at the same time. Health is not a hobby I would have ever chosen!
I've been wanting to thank you properly for your expression of concern for me. I was very touched that you thought of me at a time you have so many concerns of your own.
Tell Norah I want her "Hello Kitty" picture to have a place of honor in my "Refreshing Memories" scrapbook.
This weekend I learned to weave on the 10 inch loom my husband got me. I've wanted to learn to weave for a long time. I'm glad to be able to do crafts again. For a while chemo made my hands quite clumsy. Probably typing got me back in shape :).
Take Care! You are not forgotten!
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