J just told me the phone call we got from the doctor in the middle of the night was more serious than they initially made it sound. Corban's heart rate dropped to 25 this morning at 5:00, and they had to resuscitate him. Please keep praying for Corban. We almost lost him last night.
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
Blog Archive
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2011
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August
(25)
- Big Words and Low-Fat Formula
- My First Time "Holding" Corban
- Hip Brace
- Empty Arms
- Fever of 104
- One Month Old
- A Bit of Milk
- Only Good News
- "Less" Swollen
- Someone Praying
- Arthrogryposis
- Without the Glass Cage
- Lord! Help!
- Good News, Bad News
- Every Little Bit of Progress
- Poor Pale Baby
- Burdened for Him
- Middle of the Night Scare
- The Swelling's Gone Down
- Oh, Stomach Bug
- Chest Tubes
- Edema Sets In
- Holding Hands
- Eye Doctor
- Broviac Line Put In
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August
(25)
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