This whole experience is extremely difficult for me. I feel like something is missing and it's very strange, as I'm no longer pregnant, but I don't have a baby to care for either. Sometimes I feel as though I have already lost him.
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
Blog Archive
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2011
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August
(25)
- Big Words and Low-Fat Formula
- My First Time "Holding" Corban
- Hip Brace
- Empty Arms
- Fever of 104
- One Month Old
- A Bit of Milk
- Only Good News
- "Less" Swollen
- Someone Praying
- Arthrogryposis
- Without the Glass Cage
- Lord! Help!
- Good News, Bad News
- Every Little Bit of Progress
- Poor Pale Baby
- Burdened for Him
- Middle of the Night Scare
- The Swelling's Gone Down
- Oh, Stomach Bug
- Chest Tubes
- Edema Sets In
- Holding Hands
- Eye Doctor
- Broviac Line Put In
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August
(25)
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