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MRI Results

After a month-long struggle to get Corban's MRI to the appropriate doctors, we finally met with his cranio-facial surgeon last week to discuss the results. Did he have good news for us or bad news, you might ask? Well...
 
It's hard to say.

The doctors did say that there really wasn't anything on the MRI that would explain a mental delay. And that for the most part, Corban's MRI was a perfectly normal brain scan. So, that's good news!

BUT, the bad news is that the coronal sutures are most certainly fused and are not going to resolve themselves (unless God does a miracle). So this problem will continue to be something we'll need to watch closely, possibly for years to come.

Intracranial pressure can become an issue for Corban at any time. Unfortunately, it is also an extremely difficult thing to measure/diagnose. There's really no way of telling for sure how much pressure is building up inside his skull, so the best we can do for now is to watch his optic nerves for any signs of distress. Also, when he becomes more verbal, he should be able to tell us if he's having any headaches/nausea or other issues that would expedite the need for surgery.

BUT, as far as I can gather from the surgeon, there is nothing on the MRI at this time that would warrant a major skull surgery. So, that's good news. The surgeon even went so far as to say that Corban might not ever need the surgery, which would be AMAZING! Nothing's for sure yet, but there is the possibility that he won't ever need it.

UNLESS, of course, the surgeon is wrong and we need to be looking for a second opinion right now. Which would definitely be bad news. :(

Ugh! These things are so hard to sort through. We truly need wisdom from God in making these big decisions for our little guy. All of this is so far above and beyond us! We need His eyes to see things we can't. We need the Good Shepherd to direct our steps for us. We need Him.

1 comments:

Kathy Rogers said...

Adorable little guy! Praying much for our Maker's intervention....praying for you a deal with the unknowns....He is trying to teach us to trust Him completely and without reservation....ugh! So very hard....we want to be in control....but He is the Master....and desires to conform us to His image...love you guys! Thanks for the update!