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Corban had his swallow study today. It was much like the day we went in for our ultrasound - starting out with nervous hope (that the test would show everything was fine) then ending with all hopes being dashed upon the rocks of reality.
Everything is not fine. He failed the study in more ways than one. He has so many different things to work on that it's hard to know where to start.
He aspirated rather quickly, which is not a good sign, especially given his age. It means this problem will not be going away anytime soon. And it means he's probably been aspirating all these months of feeding him. He just does it silently (without coughing).
The lady who conducted the test was amazed that he hasn't gotten pneumonia or any other respiratory infections yet, but said this was probably due to the fact that he's been on breastmilk (win!). The enzymes in the milk work at fighting bacteria, so if it hadn't been for this, he probably would have had multiple infections by now and would have been in for the test a lot sooner.
So, what does this mean? I don't really know.
I know it means we have another gigantic mountain to climb. It means we have another long road ahead of us; only this time it's not orthopedic. It means we have yet another complexity factor shoved into our already complex picture. And it means I might have a nervous breakdown. Or two. Or three.
Trying to remember Isaiah 40:30-31, "Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."
Not feeling it. But praying for it.
Swallow Study Woes
Corban had his swallow study today. It was much like the day we went in for our ultrasound - starting out with nervous hope (that the test would show everything was fine) then ending with all hopes being dashed upon the rocks of reality.
Everything is not fine. He failed the study in more ways than one. He has so many different things to work on that it's hard to know where to start.
He aspirated rather quickly, which is not a good sign, especially given his age. It means this problem will not be going away anytime soon. And it means he's probably been aspirating all these months of feeding him. He just does it silently (without coughing).
The lady who conducted the test was amazed that he hasn't gotten pneumonia or any other respiratory infections yet, but said this was probably due to the fact that he's been on breastmilk (win!). The enzymes in the milk work at fighting bacteria, so if it hadn't been for this, he probably would have had multiple infections by now and would have been in for the test a lot sooner.
So, what does this mean? I don't really know.
I know it means we have another gigantic mountain to climb. It means we have another long road ahead of us; only this time it's not orthopedic. It means we have yet another complexity factor shoved into our already complex picture. And it means I might have a nervous breakdown. Or two. Or three.
Trying to remember Isaiah 40:30-31, "Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."
Not feeling it. But praying for it.
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4 comments:
Poor little man having yet more problems - but having you and Jason as his parents he is such a lucky child. God must think so highly of you both to entrust this beautiful little soul to your tender care and love. If I could send you strength to help you when you are feeling low and energy when you are feeling tired - but all I can send is my love and hopes for a bright future at the end of the road - Trish xoxox
I will pray this for all of you too. I do praise God for protecting Him during this time, given this recent discovery. Press on, sister. The Lord will never leave outside of His care or His love. We love you and pray God will lift your spirits
-k&d
Praying for you guys! Sorry to hear about his troubles. Praise the Lord for breastmilk!!!! Keeping you in our constant prayers. I cannot fathom the struggles you are going through. You are a strong women Paula!
Zach & Jen
Hey Paula! So text or call me. I understand everything you are going through! as you know! Edward is in the same boat! Just means that Gtube feedings for awhile until they can get stronger and bigger! Sucks, i know, but what do you do? I have been asking the Lord to take the weight off of my shoulders so I can be happy and not stressed...i will pray the same for you. Talk to you soon! Janessa
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