I had a sweet, sweet time with my boys tonight. Decided to forget about the stacks of dishes and piles of laundry, and instead, just enjoy having my family together at last. First, I soaked in my time with Corban, rocking him in the glider to my heart's content, singing him some of his favorite songs. Then I pulled out a couple books, held the boys in my lap, and read to them for as long as we wanted to. I finally convinced myself that "it is bedtime" after all and they'll need to go to sleep at some point. So, I set Corban down and went to put J in bed. I gave him a hug and a kiss, put him in bed and said, "I love
you, J." As I turned my back and started to walk out, my man of very few words said for the first time, "Me. Too."
Wow. Even the largest of vocabularies cannot express the joy of that moment. I'd say it was well worth a sink full of dirty dishes. :)
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
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