Corban could have died this morning. He wasn't handling being off the ventilator very well and spent most of the night crying. This morning, he dropped his heart rate and oxygen levels drastically low and even with chest compressions/bagging, he wouldn't come back up. The nurses thought for sure they had lost him. It took two rounds of EPI (epinephrine) to jump start his heart before he finally came back.
Thinking about this verse from Job today:
"For hardship does not spring from the soil,
nor does trouble sprout from the ground.
Yet man is born to trouble as surely as sparks fly upward." -Job 5:6-7
Corban is one who has been born to trouble. He's suffered more in his first 3 months of life, than many of us will ever experience in a lifetime. Praying the Lord has mercy and heals his little body soon. May God give us years of joy together after these months of sorrow.
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
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