A day in my life at the NICU...
Corban's night nurse said he was "very, very, very sick" and sounded like he wasn't going to make it through the night. Then his day nurse said "he had a good morning, was stable and resting well." Then the doctor came in, said Corban was not doing well and would need surgery today, if possible. Then the surgeon came in and said Corban didn't need surgery and that he was "doing remarkably well." So, if you can't find me these days, look for me in the looney bin!
CORBAN LEVI
a gift, dedicated to God
My name is Corban Levi and I was born with a rare genetic condition called Sheldon-Hall syndrome. Along with it, I have something called arthrogrypo
Because I didn't move much in my mommy's belly, my bones were weak and 4 of them broke at birth. My hips were dislocated too, but after a long 9 hour surgery, they're in place.
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
I had tons of fluid on my lungs after I was born, and had to have multiple sets of chest tubes for over 8 weeks because of it. I had trouble learning how to eat and and how to breathe on my own (still working on the eating part).
Because of all these things, I spent the first 5 months of my life in the NICU. It was a roller coaster ride, and there were days when no one knew if I would make it out alive. But just 5 days before Christmas, I finally got to go home!
I just celebrated my 4th birthday, and am so glad to be living life with my mommy, daddy, brother and sister who love me very, very much. They say I am their extra special gift from God, dedicated back to him. And I say, that's PERFECT!
Corban's Story
Blog Archive
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2011
(96)
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October
(20)
- 2 Tsp. of Milk and Doing Well
- Holding Corban Upright
- Corban and Mommy Kangaroo Care
- First Time On His Belly
- The "Family Meeting"
- That Pesky Edema
- Mom's Know Stuff Too!
- Limp, in My Arms
- Daddy Loves Me Too
- Determined to Hold Him
- Clamping Down
- A Day in the NICU Life
- God's Grace is Greater
- He's NOT Doing Well
- Pneumonia?
- No Chest Tubes
- Corban, a Gift Devoted to God
- Head is Swollen
- Broviac Bad News
- Very Special Hands and Feet
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October
(20)
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