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Game Plan
Game plan for Corban. . . take the broviac IV line out sometime in the next couple of days and see if that stops the chest tube drainage. The doctor is wondering if the broviac is resting on the lymph gland, causing it to overproduce fluid. Please pray this will work! This drainage has to stop.
A New Medicine
The biggest issue for Corban right now is the fluid on his lungs. He's on a new medicine today that is supposed to help dry up the fluid, but like everything medical, there are risks. Prolonged use of the medicine can damage his kidneys. So, please pray the fluid dries up quickly, that no damage will be done, and that he could avoid having to have surgery to fix this fluid problem.
Juggling Everything with the Kids
I'm finding it hard to juggle things these days. Spend half my day trying to find childcare and the other half talking to doctors using big words I don't understand. My head is spinning! Who has time for laundry or grocery shopping?
Not to sound ungrateful. I've been so blessed with all the help we've gotten. It's still overwhelming at times. Finding help with J and N has been one of the greatest challenges lately. It is a constant source of stress for me to try to scrounge someone up to help, so that I can go be with Corban. It's also hard on J and N for me to be gone so much. They were used to having me home ALL the time. Now, I'm hardly home at all.
It was novel at first to have different people come every day to play with them. Now, they just miss their mommy. When I'm getting ready to leave in the mornings to see Corban, J starts freaking out, crying, screaming, stomping his feet and shaking his head. N frequently says, "Mommy, but I don't want you to go! I will miss you!!" When I give them hugs and kisses goodbye, I have to pry myself out of their arms. This makes it even harder on me to go, as I a feel like I'm abandoning them. It kills me, but I need to be with Corban. What can I do?
All I know is that I'm ready for him to come home! This experience is hard on all of us, in more ways than one.
Not to sound ungrateful. I've been so blessed with all the help we've gotten. It's still overwhelming at times. Finding help with J and N has been one of the greatest challenges lately. It is a constant source of stress for me to try to scrounge someone up to help, so that I can go be with Corban. It's also hard on J and N for me to be gone so much. They were used to having me home ALL the time. Now, I'm hardly home at all.
It was novel at first to have different people come every day to play with them. Now, they just miss their mommy. When I'm getting ready to leave in the mornings to see Corban, J starts freaking out, crying, screaming, stomping his feet and shaking his head. N frequently says, "Mommy, but I don't want you to go! I will miss you!!" When I give them hugs and kisses goodbye, I have to pry myself out of their arms. This makes it even harder on me to go, as I a feel like I'm abandoning them. It kills me, but I need to be with Corban. What can I do?
All I know is that I'm ready for him to come home! This experience is hard on all of us, in more ways than one.
Medical Interventions
I'm wondering if medical intervention will end up saving Corban or be his demise. We found out today that the fluid collecting on Corban's lungs was probably caused by his central line being put in, injuring his main lymph duct. I'm definitely feeling like his problems are caused from the solutions.
Right now, we are just waiting to see if he can recover on his own or if he'll end up needing surgery.
A Collapsed Lung
Well... Bad news. Corban had a collapsed lung this morning. It probably happened from the fluid putting pressure on it, causing him to work too hard to breathe. He's ok now. Just keep praying, praying, praying that the fluid on his lungs would go away - FAST! It is very taxing on his little body.
Big Words and Low-Fat Formula
I'm learning big words these days. Try congenital pulmonary lymphangiectasia on for size. It's some other rare thing that Corban most likely has. They want to give him low-fat formula because of it. Not a smiley face in my book. Trying to understand the reasoning.
Later...
Corban is on the formula now, but after hours of seeking to understand it and trying to figure out if it was the best thing for him. I just didn't want to cause any further complications for him. Once you cause a permanent problem, you can't take it back. Obviously. The pressure is on to make the right choices for Corban. Praying the Lord gives us wisdom from above, because it's all over my head!
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