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Arthrogryposis Awareness Day - June 30, 2015

"Arthro-gry-po-sis" is a word I would have never heard if it had not been for my son, Corban.

I did not know about the 400 different causes for AMC (Arthrogryposis Multiplex Congenita) or the fact that 20-30% of kids with AMC do not survive their first year of life. I would have not known about bilateral hip reductions, spinal casts, AFOs, KAFOs or a thousand other things. But neither would I have known my son's amazing smile and contagious laugh.

So, on this day, Arthrogryposis Awareness Day, I thank God once again for giving Corban to me. The Lord could have very well taken him from us that first year, but He didn't. Almost 4 years later Corban is still here and smiling. :D

To celebrate his amazing smile and continued presence in our lives, I'd like to share some photos of Corban that photographer Rick Guidotti (Positive Exposure) took of him last November. They truly capture Corban's unique features and awesome personality.

Browse through them with me, and SMILE! And tell someone today about little Corban and this very long word that you now know because of him. "Arthro-gry-po-sis!"