To get Corban to where he is today has not been a walk in the park by any stretch of the imagination. It's been hard! Each day can be a battle... feeding him, bathing him, taking him to doctor visits, researching how to care for him, figuring out what problems are causing what, finding the right surgeons for him, recovering from surgery, battling infections, etc. etc. Sometimes I hold my breath and ask God, "what's NEXT??" And then I exhale slowly. And take each day as it comes.
Right now, we are still trying to decide where to take Corban for the surgery on his skull. I am finding out more and more that wherever we take him, it most likely won't be a one-stop-shop event. I've been told that Corban will probably need not ONE, but TWO surgeries on his skull over the course of his life. That's if it's done correctly. If the surgery is not done correctly, he will need even more than that.
He will need followup visits every year with his craniofacial surgeon and/or craniofacial team, so I definitely want to choose wisely. This is not a passing phase, but a long term commitment. The decisions we make today will most certainly affect his, and our future.
But I digress.
So, back to his legs.
Don't they look amazing?! I can't get over how LONG they look (even with 3/4 of an inch cut out). They look completely different than the jumbled mess they once were. There's structure, there's form, there's beauty. There's hope.
He still needs a good bit of work on his knees, and I'm sure there will be many more surgeries to come. But for now, I'm going to revel in the before and afters of bath time, and remember how far (by God's grace) we've already come.
Ah.....
